Meeting with Julian Jackson
For our elective project, we got to having a meeting with the Founder and Director of Vision-bridge.
This meeting was very important for us because it was a chance for us to work out how we can benefit and add value to Vision-bridge.
- How he went blind:
He started by telling us about the journey he has been through. In 2010 he lost his eye-sight to an inherited retinal disease. He had prior knowledge, he and his family knew that at some point his eye-sight will be gone. Julian and his twin brother use to walk around with their eyes closed so they could prepare for the day where they had to stop using their sight.
Even after he went blind, Julian was in denial about it. There was one time where he was getting off a plane and in between the plane door and stairs he fell and didn’t hit the tarmac because of his backpack.
Now that he’s blind he reflects on how he will never be able to see his wife or his daughter. He ended it with “you can prepare as much as you want, but you will still be surprised when it happens”
- What he stands for
Julian said that he is an advocate and campaigner for eye research. He also said he is probably viewed as a pain in the backside by people in the volunteer sector
- What are charities doing
He believes that charities are failing their supporters and beneficiaries by going to the same people every year
- Facts
He presented us with many of the hard-hitting facts about blindness. 300 million people have problems with their eyes, 40 million of which are completely blind. Every 24 hours 100 people will lose their sight. Half of people affected by blindness have got no cure. All this results in £32 billion lost each year in lost taxes and benefits that have to be paid.
20 million people can’t remember the last time they had an eye test. One final fact we were told is that when asked which sense people fear losing the most, 83% say sight.
- His personality
Julian being an advocate goes to many talks and there was one where a lady came up to him after the talk and asked if he was actually blind. He said yes I am and wondered why the question was asked. The lady said that he seemed too happy to be blind. We definitely got this impression of Julian during our meeting. But this shows that he is a man who has accepted what’s happened, he knows there is no cure at the moment but if he keeps raising the profile, maybe just maybe research might find a cure for not just him but millions of people.
- How money is spent
With most charities that raise money for research into eye problems. Very little of the money actually goes into research, most of it goes into support. Which is really good but support isn’t gonna bring peoples sight back.
- Big Blind Walk
It was great to hear about the Big Blind Walk that he did from Lands End to Jon O Groats. He had so much support which ranged from people walking for a few minutes to people walking many miles with him. He mentioned about a couple of Royal Marines who joined him. When he reached the end one of the Marines ripped his Royal Marine shoulder patch off, which he had worn in Afghanistan and he gave them to Julian saying “you f*cking deserve them”